Social Media and Chronic Illness: A Double-Edged Sword? 💻💬

80 views
1 support
16 comments

Somya.P

Community manager

10/01/2025 at 11:35

Good advisor

Somya.P

Community manager

Last activity on 17/01/2025 at 17:36

Joined in 2023

479 comments posted | 163 in the Good to know group

39 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello everyone,

How are you today? 😊

Social media has become a major source of information and support for people living with chronic illnesses. It can help connect you with communities, allow you to share your experiences, and make you feel less alone.

But it’s not always positive—social media can also bring challenges, such as comparisons, misinformation, or added pressure.

💭 What’s your experience?

Have you found online support groups or pages that have been helpful for managing your condition?
Have social media platforms ever had a negative impact on your well-being?
What do you think is the best way to use social media as a tool for support while avoiding its pitfalls?

Let’s discuss and share our experiences together!

🌟 Looking forward to hearing your thoughts,
Somya from the Carenity team 🌼

@pollyj4 @lar123 @robjmckinney @cooperman @Pinky58 @LynneC @Junej6 @fernster @jamesm @tinaann @Razor690 @jumping @millerkaren @Tigger.co.uk @happylad1970 @smokitcat @annafielding @marshy2503 @emc1cle @Mandy59 @bigroscoe @VICKICOFFEY @Mikejohn @lesmal @paulg54 @Sharon9 @redders01 @NannieAnn @Folioc @Allymal @Germantara @Somya.P @LifeDelineator @Flip5ter @RonTock @SP3RDN4 @elvinsmith

All comments

Flip5ter

10/01/2025 at 12:15

Good advisor

Flip5ter

Last activity on 17/01/2025 at 16:06

Joined in 2024

43 comments posted | 17 in the Good to know group

15 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend
Newsfeeder

View profileView Add a friendAdd Write

My FB support group COPD REHAB GUY seems to be well received, I only promote active lifestyles within sufferers capabilities, any COPD health aspects or queries are handled by knowledgeable associated groups

Social Media and Chronic Illness: A Double-Edged Sword? 💻💬 https://www.carenity.co.uk/forum/other-discussions/good-to-know/social-media-and-chronic-illness-a-doubleedged-5561 2025-01-10 12:15:38

LifeDelineator

10/01/2025 at 13:51

Good advisor

LifeDelineator

Last activity on 15/01/2025 at 12:42

Joined in 2024

106 comments posted | 98 in the Good to know group

18 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

Just as Volaire said: "If God did not exist, it would be necessary to invent him.", our lack of citizenship requires a place for our "wretched refuge" to land; and, social media is exactly that.

LifeDelineator

Edited on 13/01/2025 at 13:20

Good advisor

LifeDelineator

Last activity on 15/01/2025 at 12:42

Joined in 2024

106 comments posted | 98 in the Good to know group

18 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

Just as Volaire said: "If God did not exist, it would be necessary to invent him.", our lack of citizenship requires a place for our "wretched refuge" to land; and, social media is exactly that.

Mikejohn

10/01/2025 at 14:35

Good advisor

Mikejohn

Last activity on 15/01/2025 at 00:22

Joined in 2017

22 comments posted | 12 in the Good to know group

3 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer

View profileView Add a friendAdd Write

Yes it’s full of information but unfortunately one has to b very careful as a lot of misinformation on there and people can b tricked into buying mracale cures which are no good

See the signature

Mike

Close all

See the responses

Flip5ter

11/01/2025 at 09:25

Good advisor

Flip5ter

Last activity on 17/01/2025 at 16:06

Joined in 2024

43 comments posted | 17 in the Good to know group

15 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend
Newsfeeder

View profileView Add a friendAdd Write

@Mikejohn I am very strict in regulating my group, I have a qualified medical professionals and knowledgeable people on associated groups, anybody that mentions a book, herbal cure , gadget, video, course the comment is removed and the member is removed and banned. I only deal with promoting an active lifestyle I make it quite clear that I have no medical/sports science qualifications and that if people are concerned they should check with their doctor before carrying out any activity.

Hide the responses

happylad1970

10/01/2025 at 17:39

happylad1970

Last activity on 15/01/2025 at 23:51

Joined in 2016

8 comments posted | 2 in the Good to know group

Rewards

Contributor
Committed
Explorer
Friend
Newsfeeder

View profileView Add a friendAdd Write

I have contacts on Facebook who, don't understand the critical nature of my disabilities (diabetes,, autism dyspraxia, depression generalised anxiety disorder learning difficulties)

I think social media has made my disabilities comparable worse

See the signature

Johnny Baker

Close all

See the responses

LifeDelineator

11/01/2025 at 11:53

Good advisor

LifeDelineator

Last activity on 15/01/2025 at 12:42

Joined in 2024

106 comments posted | 98 in the Good to know group

18 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

@happylad1970 - Even though you used the word twice, I noticed you do not have single disability.

You are correct. White guilt, bubble-wrapping, has made it [ comparable worse ]; and you have embraced it both willingly and completely.

See the signature

Hide the responses

robjmckinney

Ambassador

10/01/2025 at 18:39

Good advisor

robjmckinney

Ambassador

Last activity on 17/01/2025 at 16:05

Joined in 2015

608 comments posted | 95 in the Good to know group

50 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

While I closed my Facebook account some years ago due to their political leanings and censorship. The bonus was with social services, who examine you Facebook profile to gain insight to your personnal life and opinions, not having an account prevented such intrusions. I do use my wife's account to access some good sites occasionally and have proved quite useful. I use Youtube mostly to access various subjects, while still biased not as extreme as Facebook. Clearly many medical sites have a Facebook account so clearly to access these organisations an account is necessary.

See the signature

robjmckinney

Close all

See the responses

LifeDelineator

11/01/2025 at 11:58

Good advisor

LifeDelineator

Last activity on 15/01/2025 at 12:42

Joined in 2024

106 comments posted | 98 in the Good to know group

18 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

@robjmckinney - So, like Thoreau, your, electronic, Walden Pond is still within walking distance, of a railroad track?

Hide the responses

Flip5ter

12/01/2025 at 12:14

Good advisor

Flip5ter

Last activity on 17/01/2025 at 16:06

Joined in 2024

43 comments posted | 17 in the Good to know group

15 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend
Newsfeeder

View profileView Add a friendAdd Write

The concept of Carenity is great, but it epitomises the fragmented nature of information regarding serious ailments/diseases. Navigation is not simple and identifying individual threads is difficult.
that is why I chose a more simple approach, where I promote active lifestyles, no highlighting adverse effects of COPD or asking questions about it, no other diseases (even though COPD is an umbrella term) no social posts, greetings or blessings, no promotions, spam, herbal remedies etc. but attached to the group I have 2 excellent groups, associated with mine that have expert knowledge, no searching endlessly through posts to find a pointless answer.
there is a need for a central resource that is specific to certain conditions that can be easily accessed.

Close all

See more replies | 2

See the responses

Mikejohn

12/01/2025 at 22:00

Good advisor

Mikejohn

Last activity on 15/01/2025 at 00:22

Joined in 2017

22 comments posted | 12 in the Good to know group

3 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer

View profileView Add a friendAdd Write

@Flip5ter is it on Facebook

See the signature

Mike

Flip5ter

12/01/2025 at 22:08

Good advisor

Flip5ter

Last activity on 17/01/2025 at 16:06

Joined in 2024

43 comments posted | 17 in the Good to know group

15 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend
Newsfeeder

View profileView Add a friendAdd Write

@Mikejohn https://m.facebook.com/groups/3313170608944402/?ref=share

Facebook

LifeDelineator

13/01/2025 at 13:24

Good advisor

LifeDelineator

Last activity on 15/01/2025 at 12:42

Joined in 2024

106 comments posted | 98 in the Good to know group

18 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

@Mikejohn - If advice meant anything, some government program would already be charging you for it.

Mikejohn

13/01/2025 at 18:25

Good advisor

Mikejohn

Last activity on 15/01/2025 at 00:22

Joined in 2017

22 comments posted | 12 in the Good to know group

3 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer

View profileView Add a friendAdd Write

@LifeDelineator true

See the signature

Mike

Hide the responses

Social Media and Chronic Illness: A Double-Edged Sword? 💻💬

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

Articles to discover...