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How has your condition changed the way you view your body?
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cwright17
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cwright17
Last activity on 18/11/2024 at 15:35
Joined in 2021
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I have MS, and was clinically definitely diagnosed in 2015 in year 2 of my nursing degree. I was still able to walk and run, even after I dropped out towards the end of that year. I moved back in with my mum, started working full time at my job with KFC, and could still be stood on my feet, moving and "dancing" around completing orders and stuff. I quit and got a job at doing call centre work for HSBC. I was able to confidently walk to the train station from my home and the office building for a year or so, until my mobility started going. I had to quit work indefinitely, as I no longer had the mental energy or physical ability to continue. I eventually got myself an electric wheelchair, and had been with a physiotherapist who'd got me a lycra "bodysuit" and a rollator, as well as have me do exercises to strengthen my legs. I stopped being able to do all that when I had to have a catheter fitted. Fortunately, it's no longer in, and I have to do intermittent catheterisation to help me with urinary retention. I'm not "allowed" to get pregnant, as my DMT is unsafe until 12 weeks after an infusion, and my seizures are sleep sensitive.
I feel a bit like a failure. Especially when I've had to be in A&E after a status epilipticus event, and the A&E nurse is an old classmate from university. But, I've got my husband, who I met in my 1st year, and we bought a house when I was still able to work. Then I've got my best friends, who I met after meeting my husband, and I'm an "Aunty" to their children. I'm also an aunty to blood relatives. But, in the UK, if you have a disability and are on disability benefits, you're able to at least bring some money into your house. Because of my mobility issues, I'm also able to get things from the Motability service, such as cars. I cannot drive, but my husband and his dad can, so they're my designated drivers on a car I'm getting on Monday 7th Oct. The social worker team of my local council have arranged carers to come in on the days when my husband's at work just to provide me with someone to talk to. The council's also putting a wet room in for me, just so I don't have to worry about standing up when I'm having a shower, because there'll be a seat and no trip hazards. My husband also gets "unpaid carers allowance", because he's with me 118 hours a week. I think that kind of makes me a blessing in disguise 😅
So, I'm not
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Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)
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Somya.P
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Somya.P
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Last activity on 22/11/2024 at 21:22
Joined in 2023
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Hello everyone,
Living with a chronic illness can change the way we see and feel about our bodies. Dealing with symptoms, side effects, or physical changes can sometimes make it hard to feel connected or positive about our own bodies.
How has your condition changed the way you view your body? Have you found ways to improve your self-image or feel more accepting of your body as it is?
@diane2409 @Yank34 @Nysera @francis @jenny71 @ranji13 @jowatkins @Hunterad @mcintam @lynnie852 @sashajezebel @Charliegirl62 @Scotty 2 @nanajen @Saharab @Rexhell @Cassie2048 @libranna @merlinsmidwife @gerri2011 @Lizbet @tawidow @sallyk408 @EstelleM @Bubblefaery @Jaks157 @monski @laceytree @holly0524 @Dassiansoxx @nikki77 @Scoops @minicat @Chumley @Highburymoon @fernster @LynDMa @Lilymae @katz38 @amandeep @hubbard @Eithjen @Jand23 @Rosiezgirl @Benny3840 @Rachels @LizzyB @kay123 @Hayleynokes @bernie22 @Hegerty @ropsey @fionamac @bridiemurphy @popsicles @saddlesurfer @Midge61 @cupcake1 @Blowers @Pambty @sallymay @mmullane @Mandark @VICKICOFFEY @Chalmm @Haezel67 @Sanger @Invincible @Gillyanna @PriscillaWilda @Susie39 @Margaretshadow @Technoc @Sallyjoy @Betty1 @Thunderthighs @Thiggs @Isisq01 @Ginnie @Lynne1 @Avriljervis @Sueswellings @Clementine @sdonnelly12 @Issywizzy @Shug11 @Kimberleyc @Riceys @cwright17 @helenk26 @Elk217015 @Gracefraser @ferret205
Let’s talk about what’s helped us feel more comfortable and compassionate towards ourselves.
Take care,
Somya from the Carenity team 🌼