Home
Share
Forum
Multiple sclerosis Forum
Living with multiple sclerosis
MS: How do you manage the emotional highs and lows?

Back

Patients Multiple sclerosis

MS: How do you manage the emotional highs and lows?

24 views
0 support
2 comments

Somya.P

Community manager

20/09/2024 at 20:00

Good advisor

Somya.P

Community manager

Last activity on 19/12/2024 at 19:37

Joined in 2023

433 comments posted | 15 in the Multiple sclerosis Forum

38 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello everyone,

Living with MS can be emotionally exhausting, from the uncertainty of it to the physical symptoms and their impact on daily life. It’s natural to have moments of discouragement, but it’s also so important to find ways to appreciate the fleeting moments of well-being.

@eloydon2 @Emma1024 @evlittle @Fran123 @FredaBurke @Gemzied @Georgie @Garyrobert @Madmounty @greecetogo @Hardeepb @Sueharmonypuss @harpingmad @Heidif68 @Hezza21 @Helen @pavo123 @Timemorem25 @Sk8rGirl @Irenec @Irina35 @Bailey123 @crazybear @electric wizard @Hegerty @Byojaxs @jay1508 @Jenlorraine @jenniferlittle990 @Hoppity @jmagnoux @Jillytots @Ladyisis71 @Quilt11 @Jackie# @JosephineO @Jowilliamson82 @chelsea8 @Jules13 @Julesmcguire @Juliemoore11 @Julien @Juliette @Juper79 @KarenS @lynseyg @kateheath @kathy52 @karen1970 @Nnerak @Sandy1958 @Aci1984 @Doitforkyle @alexab @Alb121 @adreeves @Allyann @Anita7263 @Yank34 @anne2211 @asmae96 @animalsdelight @chew chew @Bernieleonard @BeatriceHann @Bellotti @Bern50 @bethen @Bigfofo @Halfpint26 @GillianAlexander @Ginger999 @CathBriggs @Achybones @csgamble @Cimbobimbo @Cathy74 @Charlie219 @Christina1958 @Claire65 @AlmostFrench @Claudia.L @jerry coleman @ColinSalter @StemCell07 @cwright17 @DAVE64 @KatieD @MadDawney @debbs54 @DinahG @Dina83 @PriscillaWilda @Dlr1618* @Kencomax @Donnar @Bethy1711 @Sunshine56 @onealec10

How do you manage the emotional rollercoaster that comes with MS? Do you have any tips for taking care of your mental and emotional health?

Your stories can be a great source of support for those facing tough times. 💬💙

Take care and talk soon,

Somya from the Carenity team 🌼

All comments

Juliette

20/09/2024 at 20:37

Good advisor

Juliette

Last activity on 17/12/2024 at 01:07

Joined in 2015

33 comments posted | 10 in the Multiple sclerosis Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Hi, I have had M.S. for so long now that I can't remember not having it. You just have to get on with everything. It's become more difficult even to just move around my flat but it's tough. I have to get around my flat, I have to do the tidying up, washing dishes etc. We all know the saying - Use it or lose it - and it's very true. I will never give up doing anything unless I have to and I think that thats what everyone should do unless it is truly too difficult.

MS: How do you manage the emotional highs and lows? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/ms-how-do-you-manage-the-emotional-highs-and-lows-5400 2024-09-20 20:37:20

cwright17

23/09/2024 at 13:24

Good advisor

cwright17

Last activity on 18/11/2024 at 15:35

Joined in 2021

35 comments posted | 27 in the Multiple sclerosis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

With the emotional ups and downs, I've got my husband, family, and friends to support me. I know some of you may not have such an emotional support bubble, which is why pets exist, if you're able to have one.

In my darkest day, where I thought I was a drain on my husband, we had our dog, Lacie, and a picture came in my head. My husband coming home from work, him knowing something was up because I hadn't replied to his, "on the train now," text. Him seeing our dog curled up beside my lifeless body, probably already crying herself. That day, I started getting my life together. Getting medical records from my hospital, just so I could send them to the DWP and appeal their PIP decision. I got a good amount of back pay when the fact they were wrong with their decision.

Please be aware I live in the UK, and so it won't be the same for other countries.

DWP - Department of Work and Pensions.

PIP - Personal Independence Payment (disability benefit).

See the signature

Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)

Members are also commenting on...

Articles to discover...

04/10/2024 | Advice

Multiple sclerosis (MS) and sexual dysfunction: everything there is to know!

30/05/2024 | News

What are the benefits of herbal medicine for multiple sclerosis?

24/04/2024 | Testimonial

Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”

02/02/2024 | News

Everything there is to know about Ponesimod (Ponvory®) and Fingolimod (Gilenya®)

19/05/2017 | Testimonial

Adjusting to life after being diagnosed with MS

23/03/2018 | News

MS drug hope for secondary-progressive stage

13/06/2016 | News

New treatment can halt aggressive multiple sclerosis

02/10/2018 | Advice

Brain fog: Causes and how to cope

MS: How do you manage the emotional highs and lows?

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...