Newly diagnosed with multiple myeloma: Can you share any advice?

Hi there. Multiple mylemoa has come a long way in the last 20 years since i lost my mother at 45.. I have a close friend  with it and she has has stem replacement 8 years ago and still doing great, and living life to the full

I too have mm diagnosed last November and am now on my fourth cycle of vtd with excellent results so far. I think everyone panics when they first get diagnosed thinking the worse but you have to change your mind set a bit and take each day as it comes. Hopefully you have a good hospital and above all a good consultant. Do not be afraid to ask questions even though you might think it stupid. Explain how you feel and how your body is coping with the side effects plus any changes no matter how small. Your consultant can then tweak your regime to suit your body's reaction.

above all, keep smiling and stay positive. Good luck.

ianvine51 thanks a lot for your words, apparently I'll start on vtd soon also, so I hope it goes as well as with you. Have you had any side effects???

Thanks :D

Hi everyone,

How are you today? Have you seen this older discussion? 

Do you have any advice to share with others who are new to multiple myeloma? Is there anything you would have liked to have known when  you were first diagnosed?
@Jules21‍ @BathgateNoMore‍ @Ianjames‍ @Mhairi‍ @Ravens‍ @Annie101‍ @Janey7068‍ @Lynnette‍ @Grandadstan‍ @RonHartley‍ @desmum‍ @Olliet‍ @MaggieMM‍ @issyhay‍ @Whitewater‍ @Widgey64‍ @Thegardener‍ @GoldieM‍ 

Feel free to share here, we're all here to support one another!

Take care,
Courtney

Hello everyone,

Can you share any advice? Is there anything you would have liked to known when you were first diagnosed with multiple myeloma? 
@kellystopher‍ @Karenmay‍ @marchie‍ @Happywoman666‍ @terenceterry‍ @Andyf360‍ @Mashonganyika‍ @briandale‍ @Shannon10‍ @Dean54‍ @barto1‍ @Kittenmom‍ @Alibali‍ @maureenja1‍ @silverfox‍ @markwilders‍ @Norng17‍ 

Take care,
Courtney

I’m fine at the moment, feeling very well but due to start treatment on a trial on Friday!!!!!!!!!! 

My myeloma is very young so I’m told as I had a fall in January which showed some old fractures in my spine. I’m very well looked after by the NHS and can’t fault all the tests even going private again on the NHS.

My myeloma is hiding and hasn’t spread but my Mum and Aunt both died of this as a secondary cancer so feel very humbled that it’s been caught early.

I do suffer from a sickness phobia so thought of the drugs fill me with more fear than the cancer itself.

Thank you for reading my reply xxX