Living with lymphoma: How does lymphoma impact your daily life?

@Courtney_J My case is particular in that I didn't have many symptoms and didn't know I was sick. Mine is indolent so I haven't needed any treatment and I just have regular check-ups to track its progress. I don't work so that hasn't had too much impact on my personal life which I guess is a good thing. Interested to hear from others who have been in treatment in case I ever have to cross that bridge. x

Hello @GinaLymph

I'm in the same boat as you, in that it's indolent. I was diagnosed with NHL (follicular) a 15 months ago, with little symptoms other than constipation and heartburn (even though I take acid suppressants). So it was a shock to be told that I have a cancer which will be with me for the rest of my life. I have noticed that I am a lot more tired these days, but, I'm 62 so could be age related! I have three sets of nodes affected, top, middle and bottom, but no-one has told me what stage I'm at.

I'm meant to see the specialist and have bloods done every 3 - 4 months, but the last time I saw him was October 2021, not heard a word since. When I rang to ask when I would be seeing him, I was told "Oh we're a little behind", I should have had two check-ups by now!