Crohn's and coronavirus: what measures should be taken?

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Courtney_J

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31/03/2020 at 00:00

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 18 in the Living with Crohn's disease group

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Good morning, everyone,

Since Crohn's disease is a chronic inflammatory disease, special health measures apply to affected patients to protect them from possible complications following coronavirus infection.

Beyond general recommendations including containment and barrier gestures, more specific advice on treatments (immunosuppressants, biotherapies, anti-inflammatory drugs, corticosteroids...) and procedures in case of symptoms have been given.

Don't hesitate to read the Carenity article on Coronavirus and Chronic Illness, as well as to consult the Crohn's and Colitis UK website which gives you access to updated and specialised recommendations!

Please don't hesitate also to share your advice, experiences, or just how you're feeling down below! I think it is important that we support one another through this difficult time. Self-isolation is an ordeal for everyone, but particularly for those who are single or who are struggling with illness. But this is why our caring Carenity community is here - to listen and support its members!

Take care everyone,

Courtney

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napoleon

31/03/2020 at 11:48

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napoleon

Last activity on 17/08/2020 at 18:19

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13 comments posted | 8 in the Living with Crohn's disease group

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@Courtney_J Thank you for this. I received a letter from the NHS informing that I should isolate for 12 weeks (I'm assuming for my Imuran), so I've been doing that. Trying to keep my spirits up, but it's difficult being cooped up indoors. I'll keep an eye on the Crohn's and Colitis site, the NHS site gives me a headache, there's just too much information on it.

Crohn's and coronavirus: what measures should be taken? https://www.carenity.co.uk/forum/other-discussions/living-with-crohns-disease/crohns-and-coronavirus-what-measures-should-be-taken-3137 2020-03-31 11:48:48

frederica

30/04/2020 at 09:33

frederica

Last activity on 21/04/2023 at 17:40

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16 comments posted | 10 in the Living with Crohn's disease group

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@Courtney_J @napoleon Hello to you all, my employer has me off work and I have to admit that before that going to work stressed me a lot, so I'd been having more symptoms and worries. I'm staying at home and I don't want this virus in my daily life. Regarding my treatment, I'm on Stelara and I take vitamins C, D and B12 because I tend to have an iron deficiency. My gastroenterologist is brilliant and really takes the time to explain to me each of my new symptoms.

Wishing you all well, I hope you're taking the time to relax as much as you can, we really deserve it.

Frederica

Courtney_J

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30/04/2020 at 09:47

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 18 in the Living with Crohn's disease group

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Hello @napoleon‍ and @frederica‍, thank you for commenting!

Hi everyone, how are you doing today?

How is this time of health crisis going for you, physically but also mentally? Are you continuing to take your medications and see your doctors? Have you or anyone you know tested positive for COVID-19?

@Hazel1‍ @chriscal1‍ @Jayne69‍ @Butterfly75‍ @Morag66‍ @ArghTypeSh‍ @Nickken‍ @Sandrine6‍ @kilveboy‍ @Punk1e‍ @Denise78‍ @Hughmac‍ @Jeanjeanie‍ @Cjm_misérable‍ @Bobby66‍ @Eleanor81‍ @Ash312‍ @maricah‍

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

Eleanor81

30/04/2020 at 10:04

Eleanor81

Last activity on 30/04/2020 at 10:00

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1 comment posted | 1 in the Living with Crohn's disease group

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Fortunately my health has been great the last 6 months, I am still taking my meds every month, I was advised not to stop.... I've pretty much been on lockdown for 6 weeks now, no one in my circle has contracted the virus, we've been lucky so far..

Hope you are all doing great..

Stay Safe

Zoe1565

14/05/2020 at 09:56

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Zoe1565

Last activity on 13/01/2022 at 16:00

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Hello all, my morale is really not at its best, this lockdown is so long and it depresses me being shut in and far from family and friends. I can't wait for it all to be over, but I know we need to be cautious so there isn't a second wave. I'm won't be getting back to a normal life but at least I will be able to have my children visit me (almost 2 months without seeing them is a very long time). At least a positive point of the new measures they're putting in place is being able to get out and walk a little bit more. I've been going in circles at home and being able to stretch my legs more than once a day is a relief. On the health side, a colleague had the coronavirus but without complications. I'm keeping my fingers crossed that my family will stay safe as things start to go back to normal!

How are you all? Has anyone you know caught the virus?

Stay safe! xx

JaneAir

18/05/2020 at 17:35

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JaneAir

Last activity on 23/08/2023 at 17:47

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18 comments posted | 12 in the Living with Crohn's disease group

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@Zoe1565 Oh wow that must be a bit scary, the idea of going back to work with someone who's had it. I wonder if there's a risk of him or her transmitting it to you?

I'm doing well considering. I started a new job right before we went into lockdown, so it's been interesting learning the ropes and meeting my colleagues from home office. I also had a flare up towards the beginning (I think from the stress of it all), so that was not fun to manage. At least I was at home for it, though!

Courtney_J

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09/06/2020 at 11:46

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 18 in the Living with Crohn's disease group

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Good morning everyone,

How are you today? emoticon cute

How are you managing your Crohn's now? Is it more complicated this time of year? Have you returned to a "normal life" after these few months of lockdown? Have you noticed any flares or changes in your symptoms post-lockdown?

Feel free to share! We are all here to help each other!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

COURTNEY54

02/09/2023 at 22:55

COURTNEY54

Last activity on 05/10/2023 at 20:40

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I have been on stelara for a year now. Recently I've experienced regular pains in my rectum. The pain is a series of pulses or spasms that last a couple of minutes then pass. Only to reoccur the next day. I also have regular sensations of wanting to wee and only passing a small amount of fluid.

Crohn's and coronavirus: what measures should be taken?

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