Patients Cold Agglutinin Disease
Living with Usher syndrome: Share your experience!
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Joined in 2020
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Hello @malc66, thank you for opening this discussion and welcome to Carenity! Our Usher syndrome community is still growing, so we don't have a dedicated community space quite yet. 
@faroes feel free to come discuss with malc66 here!
For our other members, are any of you familiar with Usher syndrome? If so, what do you know about it?
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Joined in 2020
@Courtney_J @malc66 Hi, sorry I missed this notification some how! It's actually my brother that has Usher, he has type 2.
malc66
malc66
Last activity on 16/08/2021 at 16:29
Joined in 2021
1 comment posted | 1 in the Cold Agglutinin Disease Forum
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Hello, am new here.
I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye. I manage quite well day to day and keep as busy as possible.
Are there any other usher people on here ?