Patients Chronic inflammatory demyelinating polyneuropathy

Treatments for CIDP: Are there any side effects?

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Courtney_J

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23/11/2021 at 16:29

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Courtney_J

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Hello everyone,

How are you today? emoticon cute

Have you experienced any side effects from your treatments or medications for CIDP? If so, what kinds of symptoms have you experienced? What do your doctors say about it?

Feel free to share your experiences here!

Take care,
Courtney

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JohnJ66

23/03/2022 at 11:45

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I haven't been in treatment for very long, I have IVIG injections every few weeks and then I'm on a immunosuppressant. Since they injections started I've had some bad headaches, but that's really it. Has anyone else had headache?

Treatments for CIDP: Are there any side effects? https://www.carenity.co.uk/forum/chronic-inflammatory-demyelinating-polyneuropa/treatments-for-chronic-inflammatory-demyelinating-polyneuropathy/treatments-for-cidp-are-there-any-side-effects-4419 2022-03-23 11:45:16

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Sonicbear

07/02/2023 at 14:36

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@JohnJ66 Interesting.--------------------------- What Health Board are you under ?----------------- Where are you getting your IVIG treatment?----------------------Are you NHS or Private?

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Sonicbear

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Andrew010

02/04/2022 at 19:06

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Hi John

I have had IVIG treatment now for 8 months. I did get headaches and nausea on the day of having treatment but I found that if I went to sleep as soon as I got home helped.

The hospital has now changed my IVIG for a different medicine (intratect) but over the 3 months that I have been recieving this I feel as though my condition has stopped improving and has plataud.

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Sonicbear

07/02/2023 at 14:23

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@Andrew010 Interesting.--------------------------- What Health Board are you under ?----------------- Where are you getting your IVIG treatment?----------------------Are you NHS or Private?

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Sonicbear

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Treatments for CIDP: Are there any side effects?

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