Patients Castleman disease
What is something you wish others knew about CD?
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 16 in the Castleman disease Forum
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Hi everyone,
Did you know that next Friday, 23 July, is World Castleman Disease Day?
In honour of this special day shining light on and raising awareness for Castleman disease, the Castleman Disease Collaborative Network (CDCN) has published a few videos raising the voices of those living with CDC to talk about their experiences.
I thought I'd share one here:
So, what about you? What do you wish people knew about Castleman disease? What do you think can be done to raise more awareness of CD?
@ALIRAY @Dhagggart @MayaBee @emcd1951 @Justinw @SJT123 @Ikeaaron @Hender65 @Jenr87 @Bryan123 @JessicaAli @Mustang @jjmurry @Rzrbacknok @Jwalbornperales @Alice03 @mjkr1227 @Paddy123 @georgiana.em_gil @Lilly @Faithforever7 @Micki1559 @PennyLane @Jurdie @Caski33
The CDCN is also hosting a live World Castleman Disease Day event on Zoom and Facebook to discuss the latest progress and future priorities on Thursday 22 July! If you're interested in joining in, feel free to register here!
Take care,
Courtney