Patients Castleman disease
How does it feel being diagnosed with a rare disease?
- 23 views
- 0 support
- 1 comment
All comments
Joined in 2022
280 comments posted |
19 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 16 in the Castleman disease Forum
10 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator
Hello everyone,
Hope you are doing good.
Being diagnosed with a chronic condition is always stressful. But being diagnosed with a rare condition can be even more overwhelming.
How does it feel having a rare disease? In what way do you think having a rare condition affects your disease management?
Do not hesitate to share your thoughts on the subject.
Take care!