How can I best support my loved one with CD?

@Courtney_J You hit the nail on the head. My family is just so lost and confused on all of this. We don't know what's next - will he have this forever? will it come back? will it kill him? I think it's taken more than just a physical toll on my brother but a sort of psychological toll on the family. We try to be there for him but we don't really know what to say because we're just as lost and scared as he is. Is anyone else going through this?

@RhettB I'm in a bit of the same shoes as your brother so I'll permit myself to comment. If he's like me, he's feeling overwhelmed by the whole thing and the severe lack of information. He probably has the same questions as you. I'd say the best thing is to be honest with him and show that you're there for him through it all, whatever happens. I think having someone to lean on or a point of "stability" is reassuring when everything else about CD is uncertain.

Does anyone have any advise on how to "keep it together" as a loved one/carer? We're all trying to stay strong for my cousin, but honestly seeing him the way he is in treatment and not knowing if the treatment is going to work is eating at us all and making it hard to stay calm and positive like I know he needs.

Hi, when I was 18 my glands swelled in my armpit, groin and neck. I went to the doctors and they advised me to get a biopsy on the lymph node in my armpit. I was told that I could potentially have non- Hodgkin lymphoma. Few weeks went by and apparently this lymph node was being looked at by loads of people they didn’t know what it was for sure. Few more weeks passed and they concluded that it was CD. I’ve never actually found out what type I have/had. All I know is that they were happy for me to crack on with my life and that it won’t cause any major symptoms or worries. It’s been 12 years I’m now 29 and still have a few swollen glands they’ve never really grown or shrank since. I’m healthy and normal (I think). Just thought I’d let you know my experience with it. Sounds strange but I’ve never actually thought too much into it because the doctors said il be fine. I only actually researched it today because I was at the doctors earlier about something else and I seen it on my records. Hope this helps abit with the anxiety. Tom