Castleman’s disease: How often do you experience flare-ups or relapses?

Hi everyone, how are you doing today? 💬

Castleman’s disease can be a complex and unpredictable condition. Whether you’re living with unicentric or ulticentric Castleman disease, flare-ups or relapses may be a part of your journey. These episodes can bring back symptoms like fatigue, swollen lymph nodes, night sweats, fever, and more, and can significantly affect your quality of life.

💬 We’d love to hear from you:

How often do you experience flare-ups or relapses?

Do you notice any early warning signs before a flare begins?

Have you identified any specific triggers (e.g., stress, infections)?

How long do flare-ups usually last for you?

@laracroft44 @LukeIan @Mrepasky @Sarahjane79 @Wellemma @Sashvin @Caski33 @Jurdie @Micki1559 @Faithforever7 @Lilly @georgiana.em_gil @Paddy123 @mjkr1227 @Alice03 @Jwalbornperales @kimberlypolner @Rzrbacknok @jjmurry @Mustang @JessicaAli @Bryan123 @Hender65 @Ikeaaron @Jenr87 @Justinw @emcd1951 @CarolineR @MayaBee @Dhagggart @Vaishali @ALIRAY @Qamar786 @DeeBee123 @george33 @Clair1066 @samora @NAGARAJAN @Lorraineanne @FrankNagel @Castlemanmom @Gwenmestel @lwchau @PENNYLOAFER22 @JillAK @Paola00 @Tormod @ImeldaLong @krystalrosen @Bumble88 @Beastie @EvaLally @Carfee87 @Ikeaaron1 @Leah1405 @MayaThethy @Ikeaaron77 @Olesia17 @MihaiR. @Gracefraser @Paul79

Sharing your experience can provide valuable insights and support to others in the Castleman community who may be navigating similar challenges.

You’re not alone. 💙

Take care,

Somya from the Carenity Team 🌼