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Patients Autosomal dominant polycystic kidney disease
How does ADPKD impact your daily life?
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CarrieG
CarrieG
Last activity on 07/08/2020 at 18:02
Joined in 2020
2 comments posted | 2 in the Autosomal dominant polycystic kidney disease Forum
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I've been lucky in that so far it's only caused me occasional trouble with UTIs or kidney stones. It was a bit of a shock to find out I had this rare disease and even more so to know I probably got it from my father! I'm lucky that my employers are understanding and flexible with me when I need to take off or work from home because of a stone or a UTI. After I was diagnosed I tried to turn over a new leaf in my life so I quit smoking and overhauled my diet to try to bring down my blood pressure. And I really try to drink as much water as possible to help with the UTIs and stones. :)
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 2 in the Autosomal dominant polycystic kidney disease Forum
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Hello everyone,
Let's talk about ADPKD in the day-to-day!
What impact has autosomal dominant polycystic kidney disease had on your daily life? Have you had to change aspects of your daily life or routine because of it? Has it had an impact on your personal or professional relationships? What do you do to cope with the symptoms in the day-to-day? What do you think?
@spikey mikey @Jennilee @Maggiehm @Caroline1651 @Roni12
Feel free to share here!
Take care,
Courtney