MS and the Coronavirus - How are you handling the pandemic?

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Courtney_J

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13/03/2020 at 12:36

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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Hello dear members,

While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.

Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

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MSWarrior123

09/04/2020 at 11:24

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MSWarrior123

Last activity on 12/11/2024 at 19:17

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Morning everyone. I was diagnosed april last year and my MS was triggered my some impacts id had to my back emoticon sarcastic I have relapsing & remitting MS and currently have Tysabri infusions. I havent heard anything from gov or gp re isolating, but I am... well as best as I can. I have 3 children 22, 17 & 9 and we are learning together all about my MS after an aggressive start... relapse, after relapse, after relapse!! Life is, surprisingly to some when they ask me, going good, I have MS & now Covid19 worries, but currently the MS doesnt have me like it did the first half of last year, The dark cloud that was also over our house has lifted and that has left us all learning what our normal is now and liking what we find.... inc me getting a new man emoticon wink lol . Happy to chat to anyone, if that would help destress you, I look at it like we are all in same boat ~ we just all have diff style boats. Sue

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-09 11:24:23

LindaBlacker

11/04/2020 at 12:18

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LindaBlacker

Last activity on 12/05/2024 at 21:36

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Ms warrior 123 I too have a new man four months in. I have 1 daughter. I now have secondary ms. I'm still walking. Had ms 39yrs. I swear by exercise. I'm an ex personal trainer. I keep well . Live alone hard getting supplies of food . I usually order my shopping on line home deliveries. Before this deadly virus. Keep safe love talking to you x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-11 12:18:37

LindaBlacker

11/04/2020 at 12:21

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Last activity on 12/05/2024 at 21:36

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Hi daisy sorry hun I only take pre gablin. Had steroid infusions. Once your diagnosed with secondary you are forgotten. Lovely talking to you. I'm still walking. I've had ms for 39yrs now. I swear by exercise to keep mobile. Keep the muscles strong x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-11 12:21:54

LindaBlacker

11/04/2020 at 12:29

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Bless you all we are all in the same boat it seems. Now we have each other. The drs dont really help. Most dont know much about themselves. I keep fighting this battle with ms. Covid virus is so scary I'm so terrified. I cry most days so worried about my family and friends too. Keep your chin up as they say. Cheers everyone

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-11 12:29:13

MSWarrior123

Edited on 12/04/2020 at 12:25

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@LindaBlacker‍ Im keeping my positive pants on!! 😂 Lovely to hear from you too....im thinking a new good man is deffo the way forward lol!! Yep im positive im having mild flare ups cos of the of stresses involved in trying to get a damn food delivery slot aswell as my body re adjusting to the warmer weather!! But going to pick up a book and lose myself in it to see if that helps!! 🤞 Keep safe & keep smiling 😊 x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-12 12:22:33

LindaBlacker

12/04/2020 at 13:38

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M s warrior 123 lovely to hear you have a new man it certainly lifted my spirits. I'm so glad your reading anything to deal with the stresses of today will help you x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-12 13:38:24

LindaBlacker

12/04/2020 at 13:45

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I try to not think about this coroner virus as it doesnt help ms. I think as long as we are all keeping as safe as we can be that's all we can do. I miss hugging my daughter and three grand children. But it a small price if we get to be close to them.......................... take care you lovely people on here sharing our worries with each other cheers x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-12 13:45:08

LindaBlacker

15/04/2020 at 11:12

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Hi ms warrior 123 I too am getting stressed about delivery slots being taken. No one seems to realise we cant all get out to go to supermarkets. Hope the weather cheers you up. Stay safe x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-15 11:12:08

MSWarrior123

16/04/2020 at 15:16

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I found out if you're up early hours 2ish you can generally get a slot with asda... and if you pay monthly for delivery can make it a reoccurring slot... but only by choosing reoccurring on that first bit of having chosen a slot!! Ive found its midnight for tesco slots... but u get put in queue and its a no faffing about when get put through!!

Hope this helps ppl & keep safe n smiling xx

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-16 15:16:40

LindaBlacker

17/04/2020 at 16:57

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Thankyou ms warrior for letting me know about tesco. I will try love. Hope your ok best wishes x

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-17 16:57:01

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