MS and the Coronavirus - How are you handling the pandemic?

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Courtney_J

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13/03/2020 at 12:36

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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Hello dear members,

While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.

Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

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LindaBlacker

29/03/2020 at 18:32

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LindaBlacker

Last activity on 12/05/2024 at 21:36

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I too have secondary ms. I live alone exercise daily as use it or loose it. I was a personal trainer when I was younger. I beleive we fight ms at every level. If I dont exercise I would end up in a home which is a wasted life to me. I've never been offered any medication only pre gablin or steroids. I dont rely on the medical people. I find life difficult every day. Now with corona virus it's even worse than before.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-03-29 18:32:50

Courtney_J

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30/03/2020 at 11:12

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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@LindaBlacker‍ @Carrie16‍ @brianbeecroft‍ @Nathan76‍ @Desertflower‍ @Vixen10000‍ @Jomarian‍ @clarebear030574‍ @ladymary‍ @nameless‍

Hello everyone, thank you for your comments here. Please don't hesitate to keep us all updated on how you're doing here or in any of the general discussions. I think it's important that we stay strong as a community and help one another through this difficult time!

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-03-30 11:12:10

Jolly1980

Edited on 30/03/2020 at 21:50

Jolly1980

Last activity on 22/04/2020 at 10:55

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Hi I'm Angela from Glasgow,scotlandI have just turned 40 and was diagnosed at 28byears old. I'm on 2 biological drugs that lower immune system. One is abagio for Ms and cosentyx for psoriatic arthritis. Obviously I'm super concerned about covid 19. I have had a text but no letter yet. I'm self isolating as my wife also has diabetes type 1 aswell. My problem i need to go out for shopping and medication because I have nobody else to do it for me. As for my neighbour's I dont really know them and I wouldn't want them to risk getting I'll either. This is a mine field but at least we have each other. Keep safe.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-03-30 21:21:11

Helenak

31/03/2020 at 10:04

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Helenak

Last activity on 17/06/2023 at 10:23

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5 comments posted | 4 in the Living with multiple sclerosis group

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This Coronavirus scares me so much, trying to carry on as normal as possible. Currently at home due to the virus and also trying to limit myself to one news broadcast a day as it was starting to take over my head and life! Hope everyone is staying safe

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-03-31 10:04:26

Jolly1980

31/03/2020 at 20:05

Jolly1980

Last activity on 22/04/2020 at 10:55

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I'm worried about needing help with shopping and prescription pick up. I know there suppose to be help out there but I've had no information on it. I would have thought by know we should have got notified. My issue is I dont have any social work involvement, dont know my neighbors and the family I do have are my dad whose waitting for pacemaker and mum is getting radiotherapy. I feel disgusted by it all because when I do go out I'm terrified and I've no option but to take the risk. Just fed up and angry as I feel I'm slipping through the net once again. On the positive side I've learned I can cook.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-03-31 20:05:29

Paula18

01/04/2020 at 20:46

Paula18

Last activity on 27/03/2023 at 19:59

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I've had ms since I was 33 I am now 52 I was also diagnosed with fibromyalgia about 8/10 years ago I've had no information of any of my doctor's I am staying in ..... The most things that are keeping me going is the day when I can hug my granddaughter again ..

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-01 20:46:42

Scottydog

06/04/2020 at 01:09

Scottydog

Last activity on 12/05/2021 at 19:48

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I got diagnosed 3 years ago, started tysabri on that for 2 years and 3 months and my jc titre level was 3.92 highest the hospital have ever seen

So i decided to switch to gilenya last october with one new lesion in 3 years

Ian unable to run anymore, my balance is not the best, my sleep pattern is horrendous but i still get up at 5 30am every morning to go to work

Regarding this coronavirus i dont think about it, keep it in the bck of your mind yes and look out for symptoms, but i was told dont stop gilenya as a ms rebound is most probably likely

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-06 01:09:14

LindaBlacker

06/04/2020 at 16:10

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LindaBlacker

Last activity on 12/05/2024 at 21:36

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As I have secondary ms live alone I'm struggling to get shopping delivered. We seem to be forgotten does anyone else have this problem

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-06 16:10:19

phonixmyth

06/04/2020 at 16:26

phonixmyth

Last activity on 28/07/2020 at 13:55

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Hi all

I always (well for the most part) stay positive and look for the beauty and best in life. There is life after a diagnosis of MS and will be after these challenging times are behind us.

Take good care and stay safe. X

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-06 16:26:11

Daisybuster

07/04/2020 at 10:18

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Daisybuster

Last activity on 06/05/2023 at 10:37

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@Courtney_J finding this virus thing horrible and making me more anxious. Told not to travel not to go out, not to do anythink !

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K.t

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-07 10:18:26

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