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Patients Multiple sclerosis
What is your MS story? Let's share!
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LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
Lynseyg how true I've had ms forty years myself. My motto is use it or loose it. Never give up on ms we are stronger than we think. Hope is all we live for
Dianeh
Dianeh
Joined in 2015
Hi I have had MS most of my life MRI in2015 says it all find it hard to walk now but I won’t give up. 3 children has helped I was fine when I was pregnant and about a year after that but now 56 going down hill forget things and don’t right anymore, I have lost contact with everyone. But I can still smile Diane
LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
Awe god bless you Diane. You sound as though your a strong lady. Good for you you have the right attitude. Use it or lose it my motto exactly. I've had ms forty years now I still walk I'm a fighter like yourself. Please keep pushing forth. People that give in to ms will be more disabled than people that dont. As I live alone I dont have much choice really as I can I only have myself to care for. Your an inspiration to others that say they cant. I never say I cant I say I have to being alone. Cheers Diane for being a strong lady x
LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
DianeH please dont give up the fight. I'm 64yrs old. Had ms since I was 24. Giving up means your closer to death. I walk with a stick and I could never even think about a wheelchair. Having to rely on someone else. I like to be independent as long as possible. Please push yourself it's worth it for your health
Dianeh
Dianeh
Joined in 2015
I think I have given up most of the fight I don’t do what I want anymore, I just sit and think I want to walk the dogs go kayaking see the outside world but I just sit and put on weight, I need a kick up the bum.
LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
If you dont move push yourself. Your body will give up the fight. I've had ms almost 41yrs. If I didnt push myself I'd be in a wheelchair by now or even dead. I still walk maybe with a stick. I've secondary ms. The ms society says the new findings about exercise. Can in most cases repair the body. Please think about it use it or loose
MSMaven
MSMaven
Joined in 2020
@Dianeh Stay strong Diane, don't let the MS win! I know how hard it is, every day is a challenge. Don't forget to be kind to yourself and don't get too down on yourself if you can't manage certain things. Every step you take or activity to you engage in is progress!
Dianeh
Dianeh
Joined in 2015
Your all strong but I think all this lockdown has been the last straw for me, I was supposed to be going away at the end of March April for three weeks, the first proper break for five years kids have left home but I don’t think I will be able to go. I was going in September but that was cancelled.
but we do as we are told and smile
jenny47
jenny47
Joined in 2014
Hi I have never posted before.. I have SPMS and am now in a wheelchair but I have a personal yoga teacher that I see via Zoom twice weekly. I am a great advocate of yoga now having had it for 3 years. It has helped keep me as mobile as possible. I use to be very active so the frustration now is the worst of it but I will keep ploughing on and hope for a cure asap ! Stay well all and keep moving.
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jenny47
Somya.P
Community managerGood advisor
Somya.P
Community manager
Joined in 2023
Hello everyone,
How are you today? 😊
Have you had a chance to check out this ongoing discussion? It could be interesting to gain some insights from some of our new members on their MS story:
@TomShillington @Nexabyqu @Elk217015 @Sdianew03 @jayane @HarrietJ22 @Chellechelle @kateheath @Kanaboyo @Louiseogb @Mrspotter @flowergirl @Claudia.L @Susie38 @Serdie @Narcisse @waggywoo1 @waggy1 @Luke3341 @Iannoh @nazza91 @Caz1979 @billyjon @Jérémyy @Priya1988 @Rach115 @NicolaS @JoLynn @Trish54 @Leicester-City-Fan @LindaMS @Franran3 @niamhobroin2021 @Byojaxs @alexab @AnneLH @Trumpmercy @Brigits @Skiptry @NaClearth @LIBBYSMUM10 @volvof88 @James-S @Debswallace @ahmedi @Gazza65 @Eab108 @Maddi1 @JackieChristie @karen5 @BeccaWill94 @elmcroft25 @Theawr @rubyrose69 @Bryan123
Don’t hesitate to share your questions/thoughts/advice with us here!
Take care,
Somya from the Carenity team 🌼
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Somya
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Joined in 2020
Hello everyone,
How are you feeling today?
I thought I would open this discussion so we can all get to know one another better!
So, what is your MS story? How and when were you diagnosed? Which type of MS do you have? How are you doing today? What medications or treatments have you tried? Do you have any advice to share with someone newly diagnosed with MS?
@Miss.MS @Rolley5 @VickiD @Emma123 @Emma1024 @shunt999 @Zombieapplebaby @madsheep71 @Tilly68 @Bern50 @Meggie333 @182614 @Diva360 @Charlie12345 @Harps10 @Jemgavlaa @Fl33tw00d @thembrough @EmilieH @Kareema
Feel free to introduce yourself and share your story here!
Take care,
Courtney